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Houstoncancerquack.com Campaign Aims to Shame Burzynski While Raising Money for Legitimate Cancer Research

David Gorski already mentioned this on Monday,  but Burzynski’s birthday is rapidly approaching (January 23rd) and I want to encourage our readers to donate to the Burzynski birthday campaign.

Burzynski’s misdeeds are highlighted by the stories on the website The OTHER Burzynski Patient Group   If you haven’t already visited that site and read some of the stories, please do. 26 patient stories have already been posted, with another hundred or so to come. They show a pattern of lies, unethical practices, exorbitant charges, and harm to vulnerable patients. This has to be stopped!

Over $10,000 has already been raised. It’s tax deductible and easy: just click on the donate button here and supply your credit card information. The goal is to raise $30,000, the amount that a Burzynski patient typically has to pay for treatment that is misrepresented as a clinical research study! (In most legitimate clinical trials, patients are paid, not charged). The funds will be given to St. Jude Children’s Hospital for cancer research, and Burzynski will be notified on his birthday that it is a birthday present for him. He will be offered the opportunity to match whatever has been donated. He can well afford it from his ill-gotten gains. He lives in a $6 million, 14,495-square-foot mansion.

We talk a lot and complain a lot, but we seldom have an opportunity like this to actually do something, to simultaneously support science-based medicine and publicize the sins of a miscreant. Please donate.

 

 

Posted in: Announcements, Cancer

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What’s past is prologue

Today marks the five year anniversary of the blog. I was not part of the initial stable of writers, my first entry published Jan 31. As I remember it shortly thereafter they browbeat me into writing twice a month. I had a lot of hesitancy participating as I was uncertain I could keep up with the twice monthly writing requirements. I am a slow writer and a slower typer, but it has been one of the most intellectually rewarding experiences of my life.

I have become a better writer, but more importantly a vastly better thinker, as a result of interactions with SBM. I have also been convinced I have some sort of language processing disorder as I still can’t see how those pesky typo’s disappear during my countless rewriting only to reappear in the final draft. Either WordPress inserts them automatically or it is magic most foul.

Five years on, and a new year, are as good an arbitrary time as any to reflect on both the past and future of SBM. As I age the more I am of the opinion that I have the carte blanche of the elderly to say whatever I want. It’s all about wearing the purple. (more…)

Posted in: Announcements, Science and Medicine

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Brief Announcement: Video of Panel on Alternative Medicine

Last month at JREF’s The Amaz!ng Meeting in Las Vegas, 3 SBM bloggers along with Rachael Dunlop of Australia participated in a panel on “The  Truth About Alternative Medicine.” The video is now available on Youtube. It’s a chance for readers to see Steven Novella, David Gorski and Harriet Hall and hear them speak instead of just reading what they write.

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Brief Announcement

My book Women Aren’t Supposed to Fly: The Memoirs of a Female Flight Surgeon  is now available as a Kindle file for $3.99. If you don’t have a Kindle device, there is a free download so you can play Kindle files on your computer or iPad.

Some readers may remember my mentioning it on SBM 4 years ago in the context of an article on women in medicine. A lot of people prefer to read books electronically these days, so I thought I’d let you know.

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Announcement: New Edition of Consumer Health

For decades Consumer Health: A Guide to Intelligent Decisions was the only textbook available for college classes on the subject, and it is still the best: the most comprehensive and the most reliable. It was first published in 1976, and it has clearly had staying power. An updated 9th edition has just been released. The authors have changed over the years: this edition’s authors are Stephen Barrett, William London, Manfred Kroger, Harriet Hall, and Robert Baratz. It’s an invaluable compendium of information that would be useful to any consumer, and it’s unfortunate that McGraw-Hill is marketing it as an expensive textbook ($163).

What exactly is “consumer health”? The book’s preface and the table of contents are available here. They will provide the long answer to that question. The short answer is:

The book’s fundamental purpose is to provide trustworthy information and guidelines to enable people to select health products and services intelligently. (more…)

Posted in: Announcements, Book & movie reviews

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Brief Announcement: World Skeptics Congress

The 6th World Skeptics Congress will be held on May 18-20 in Berlin, Germany. Topics will include: Why do people turn to pseudoscience for help? What makes alternative medicine so attractive – and how can we find out what really works? Why is it so difficult for us to deal with risk and uncertainty in a rational way? Can we teach children to think critically and scientifically? And how can academic disciplines like biology or psychology protect themselves from pseudoscientific contamination?

Dr. Harriet Hall will be speaking on “CAM: Fairy Tale Science and Placebo Medicine.”

Details are available here.

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Podcast Interlude

I’m traveling this week, checking out pharmacy practice internationally, and looking for signs of science-based medicine. Instead of a post, here are the links to two podcasts I recently recorded that will be of interest to SBM readers. Sit back, press play, and enjoy.

Point of Inquiry: Dispensing Skepticism

I recently spoke with Karen Stollznow for the Point of Inquiry podcast. This discussion focused on the role of the pharmacist and the need for science-based pharmacy practice. We touched on a lot of issues including the changing role of the pharmacist, the ethical responsibilities of pharmacists when it comes to products like homeopathy, what compounding pharmacies do, what generic drugs are, what an expiry date means, what pharmacists think about vitamins and other supplements, and more. You can listen to the podcast here.

Skeptically Speaking: The Common Cold

I was recently the guest of Desiree Schell on Skeptically Speaking, where we spent an hour discussing the prevention and treatment of the common cold. You can listen to the podcast, and I’ve compiled a long list of related links and references on cold treatment for your reading pleasure too.

 

 

 

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SBM at TAM9

Many of the SBM blogger are at The Amazing Meeting 9 this week – or TAM9 From Outer Space, as it is whimsically called. The JREF, who sponsors TAM, is a big supporter of our efforts at SBM and, in fact, as of this year co-sponsors this blog along with the New England Skeptical Society (both non-profits).

This year, as with the last two TAMs, there will be a workshop on SBM. The topic is, “Oh no, not again! – Recurring themes in medical mythology.” David Gorski, Kimball Atwood, Harriet Hall, Mark Crislip and I decided to discuss the most common recurrent themes in unscientific or philosophy-based medicine (which is much of what passes for CAM). The core idea of the workshop is that the same basic themes keep cropping up again and again in CAM modalities. They may contain slight variations on the basic theme, but mostly are just the same thing with a different superficial window dressing.

So, for example, many systems are based upon the common theme of “energy medicine” – the notion that there is a life force or life energy that is responsible for health, and blockages in the flow or power of this energy cause “unwellness.” Modalities as apparently distinct as straight chiropractic, acupuncture, and Reiki are all based on this pre-scientific idea.

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Kudos to Steven Novella

It has just been announced, in the July/August issue of Skeptical Inquirer magazine, that our own Steven Novella has been awarded the 2010 Robert P. Balles Annual Prize in Critical Thinking. It will be formally presented at the CSIcon conference in New Orleans on October 28, 2011. The Prize is a $1500 award given to the author of the published work or body of work that best exemplifies healthy skepticism, logical analysis, or empirical science. The Committee for Skeptical Inquiry (CSI) selects the publication that, in its judgment, has the greatest potential to create positive reader awareness of currently important scientific concerns. Previous awards starting in 2005 were for individual publications. In Dr. Novella’s case, the award was for his entire body of work. In the letter informing him of his selection, CSI Executive Director Barry Karr said,

…you are being honored for your tremendous body of work including The Skeptic’s Guide to the Universe, Science-Based Medicine, Neurologica, your SKEPTICAL INQUIRER column “The Science of Medicine,” as well as your tireless travel and lecture schedule on behalf of skepticism. You may well be the hardest worker in all of skepticism today. And to me, the truly amazing thing is you do all of this on a volunteer basis.

He is also the president and co-founder of the New England Skeptical Society, a fellow of CSI, a founding fellow of the Institute for Science in Medicine, a medical advisor to Quackwatch, a contributor to other blogs, has produced a course for The Teaching Company on “Medical Myths, Lies, and Half-Truths,” and is Senior Fellow and Director of the James Randi Educational Foundation’s (JREF) new Science-Based Medicine project. And I have undoubtedly omitted several of his other accomplishments.

It is hard to believe he hasn’t cloned himself, since all of these achievements are in addition to his demanding day job as a clinical neurologist, assistant professor, and director of general neurology at Yale University School of Medicine.

Congratulations, Steve! The award couldn’t have gone to a better candidate. I want to add my personal thanks for all you do and say how proud I am to be associated with you. You da man!

 

 

 

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