All Comments

  • Mike H. { I do understand Peter’s position. While I don’t think the science is lying to us, the alternative pet theories and the disagreements between researchers, physicans,… } – Jul 21, 3:54 PM
  • Yodel lady { I wish these bills would define “potentially life saving.” They imply there’s a magic treatment out there which will not only stop a degenerative disease… } – Jul 21, 3:45 PM
  • Mike H. { I do understand Peter’s perspective. While the evidence is there, there is indeed lack of consensus among gov’t bureaucracies, research/academia, some advocacy organizations, and physician’s… } – Jul 21, 3:43 PM
  • Mike H. { The vast majority of what Peter copy/pasted is backed up in peer-reviewed studies. And much of it has been replicated over and over throughout the… } – Jul 21, 3:27 PM
  • jsterritt { It is one of the defining inconsistencies of CLD that sufferers have a particularly virulent and active infection that is at the same time so… } – Jul 21, 3:19 PM
  • mho { And in my opinion, the patient often comes to terms with death before the families, and neither the patients or their families understand the bitter… } – Jul 21, 3:00 PM
  • Roadstergal { Thanks for the rec – it looks like a great resource. I’m especially going to be interested to read through the posts on nutrition and… } – Jul 21, 2:42 PM
  • David Gorski { So why did Arizona legislators send right-to-try as a referendum for the voters rather than just passing it? } – Jul 21, 2:06 PM
  • weing { “That is exactly what a lot of old people are fighting,, i.e. the` right to try’ anything to keep a person, willing or not, alive… } – Jul 21, 1:52 PM
  • Sonysunshine { When my children were attending an overseas private school, they got lice several times. Everyone did; must have been the long winters and sharing of… } – Jul 21, 1:37 PM
  • KayMarie { Probably going with the more woo version “adrenal fatigue”. All you need for that is some kind of stress, like the emotional and mental fall… } – Jul 21, 1:12 PM
  • Jopari { Only dogmatic speeches are ever interrupting here, discussion is healthy, it shows you think logically. Though the decreasing space is getting to me. One thing… } – Jul 21, 1:06 PM
  • JD { I know that it is yet another phenomenon that has been co-opted by naturopaths and the like, but why is it that the woman in… } – Jul 21, 1:01 PM
  • Kevin Jones { Again, you are incorrect. First, if it really was easier for legislators to “punt”, there would be dozens of issues referred to the ballot (there… } – Jul 21, 12:51 PM
  • oldebabe { That is exactly what a lot of old people are fighting,, i.e. the` right to try’ anything to keep a person, willing or not, alive… } – Jul 21, 12:49 PM
  • mouse { I said “But then again, I’m equally awkward in person.” Actually, probably more awkward in person as my brain goes much slower than the typical… } – Jul 21, 12:48 PM
  • mouse { KayMarie “I replied where the thoughts occurred to me, I didn’t go through the thread to try to find a perfect home for them.” That’s… } – Jul 21, 12:44 PM
  • David Gorski { Well, yes and no. I didn’t say anything about cheaper or easier, for one thing. I only said that it’s easier to persuade the electorate… } – Jul 21, 12:41 PM
  • Kevin Jones { Your analysis on a referendum is incorrect. It is always preferable and much cheaper to simply pass a bill through the Legislature. Keep in mind… } – Jul 21, 12:37 PM
  • Windriven { Oh, that would be ironic though the irony would likely be lost on the Burzynsiite. ;-) } – Jul 21, 12:14 PM
  • Windriven { Sorry TsuDho, I misread your question. 30% fail to proceed to Phase II using Michael’s source. } – Jul 21, 12:13 PM
  • Windriven { Michael above quotes 70% along with a link. } – Jul 21, 12:06 PM
  • WilliamLawrenceUtridge { Probably, and probably without irony, by a Burzynski supporter. } – Jul 21, 11:52 AM
  • David Gorski { I haven’t seen any polling on it yet, but I’m sure anyone who comes out against it will be painted like you were by Mr…. } – Jul 21, 11:52 AM
  • Chris Hickie { I haven’t seen any polling on it yet, but I’m sure anyone who comes out against it will be painted like you were by Mr…. } – Jul 21, 11:46 AM
  • Tsu Dho Nimh { “Among drugs tested in phase II trials, only 30% go on to phase III” How many don’t make it from Phase I to Phase II? } – Jul 21, 11:39 AM
  • n brownlee { Type II diabetics can control the disease and tremendously slow the progress with tight blood glucose control; I did it for more than ten years…. } – Jul 21, 11:05 AM
  • JD { For culturing, I have always been taught that it is a media problem. I think that needing to survive in both mammals and ticks plays… } – Jul 21, 10:59 AM
  • David Gorski { Having worked part time for a couple of years during medical school for Warner-Lambert/Parke Davis (before it got bought up by Pfizer) part time back… } – Jul 21, 10:37 AM
  • David Gorski { Ask and ye shall receive. I forgot to include the link, but have now gone back and added it, along with a bit of additional… } – Jul 21, 10:35 AM
  • David Gorski { The ballot proposal in Arizona will, of course, almost certainly pass—likely overwhelmingly. There’s a chance of preventing the passage of right-to-try laws in a state… } – Jul 21, 10:27 AM
  • WilliamLawrenceUtridge { Ugh. For example, Dr. David Gorski, a surgical oncologist and editor of the blog Science Based Medicine, said, “These (Right to Try) proposals are built… } – Jul 21, 10:26 AM
  • Jopari { I’m gonna quote Assassin’s creed here cause I liked the quote. “There’s a difference between having an open mind and a mind so open birds… } – Jul 21, 10:19 AM
  • Michael { http://patientnetwork.fda.gov/learn-how-drugs-devices-get-approved/drug-development-process/step-3-clinical-research 70% from Phase I go on to Phase II 33% from Phase II go on to Phase III 25-30% from Phase III go on… } – Jul 21, 10:10 AM
  • Windriven { I have a certain sympathy for the motivations of the ‘right to try’ crowd, but it seems to me that there are parts of the… } – Jul 21, 9:51 AM
  • Chris Hickie { I live and practice pediatrics in Arizona, where the Goldwater Institute is headquartered. Arizonans will vote on a “right-to-try” law this November election as a… } – Jul 21, 9:43 AM
  • WilliamLawrenceUtridge { and the only place they can get the proper treatment is Mexico, where they are much more advanced in these things, more open minded, don’t… } – Jul 21, 9:33 AM
  • simba { http://www.thejournal.ie/lyme-disease-treatment-ireland-1515649-Jun2014/ Have a look at this one, very sad story. I feel sorry for the lady mentioned and wish her all the best. Months of… } – Jul 21, 9:32 AM
  • WilliamLawrenceUtridge { I read that comment three times going “what’s he trying to say?” Completely added the missing “n” each time in the process. } – Jul 21, 9:24 AM
  • WilliamLawrenceUtridge { I have very little but pre-existing prejudices, some reading into the comments based on them, and a total unwillingness to undertake the research. I’ll cop… } – Jul 21, 9:23 AM
  • WilliamLawrenceUtridge { Ah, pseudoskepticism, the condition found when someone exhibits healthy skepticism of one’s favourite One True Cause of whatever you believe in. “I notice that you… } – Jul 21, 9:18 AM
  • Windriven { “There are estimated to be 1,200 requests per year now, a number that is increasing, and it is uncommon for the FDA to deny a… } – Jul 21, 9:11 AM
  • KayMarie { For people using insulin there really is a need for routine self monitoring as you have to be careful with the dosing. The syringe isn’t… } – Jul 21, 9:11 AM
  • e canfield { Not that I *know* but wouldn’t at least part of the price of a drug be in the amount of research put into it, and… } – Jul 21, 9:03 AM
  • KayMarie { Unfortunately a lot of scientific jargon and nomeclature is confusing at best, and often how the terms are used have changed over time, and the… } – Jul 21, 9:00 AM
  • mouse { No, you didn’t sound defensive. No worries. } – Jul 21, 8:59 AM
  • Peter S { Mike H. — I am not a medical professional, just a long-term patient and parent of an autistic child now adult, so my opinion is… } – Jul 21, 8:58 AM
  • mouse { Well, to be clear, my comment was based on a desire to clarify that the word syndrome in a diagnoses does not mean that the… } – Jul 21, 8:55 AM
  • KayMarie { I know it is an anecdote but all this right to try reminds me of the one project where I had to go over to… } – Jul 21, 8:54 AM
  • TL { With shrinking profit margins (from shrinking profits), the drug companies actually will research less drugs overall. It’s a problem they see over in Europe, because… } – Jul 21, 8:45 AM
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